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Rhys' story

"It has been an extremely hard journey, and feels like it has only just begun." Rhys was diagnosed with a Chiari malformation in March 2020 as the UK entered the first lockdown. He shares his journey from diagnosis to recovery, and how he plans to raise awareness of this rare condition.

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Your stories

"I am so glad you are there. You have relieved me of so many worries and given me so much hope"

Pauline's story

Pauline's story

Richard came to the Brain and Spine Foundation after his mother, Pauline, suffered a subarachnoid brain haemorrhage (SAH) during the pandemic.

Gavin's story

Gavin's story

Gavin was diagnosed with a brain tumour which caused sight loss of 75%.

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