"I thought to myself there's two roads I can choose here; I can lie down and become a statistic of an illness that can't be cured; or I can try to get on the best I can and prove the predictions wrong. So I did."
Blake Beckford was the first fitness model to win a national fitness competition with an ostomy. He was also diagnosed with a Chiari malformation, here he shares his story
Vic had a subarachnoid haemorrhage in 2009, whilst on holiday in India. He shares his incredible story from navigating his way to the local hospital on a tuk-tuk, to his operation and recovery.
Rhys was diagnosed with a Chiari malformation in March 2020. He is now an Ambassador for the charity and wants to raise awareness and help others affected by this rare condition.