International Brain Tumour Awareness Week: Gavin’s story and finding information after a diagnosis
A brain tumour diagnosis can change life in unexpected ways. This International Brain Tumour Awareness Week, we’re sharing Gavin’s story and highlighting the information available to help people affected by brain tumours understand their condition and navigate what comes next.
International Brain Tumour Awareness Week takes place from 24–31 October 2026. It is an opportunity to raise awareness of the challenges faced by people diagnosed with brain tumours, and the importance of information, support and research.
For Gavin, a brain tumour diagnosis in 1995 changed the course of his life.
Gavin’s story: learning to live with a brain tumour
In 1995, Gavin was a fit and active 21-year-old working as a carpenter in Salisbury. He enjoyed playing football with friends and was considering his future career options.
He had been experiencing migraines for two years, and while playing football, he began having difficulties with his vision. After visiting his GP, he was referred for an urgent MRI scan.
The results changed everything. Gavin was diagnosed with a brain tumour.
In December 1995, he underwent surgery at Southampton General Hospital. However, the tumour was in an area of the brain that was too complex to remove safely without risking serious complications. The tumour was benign, but it caused Gavin to lose 75% of his sight.
The impact extended beyond his vision. Gavin also developed hydrocephalus, a build-up of fluid in the brain, and needed cerebral shunts to help manage the condition. Further operations were required in the years that followed to replace the shunts.
Despite the challenges, Gavin adapted to his changing circumstances. After rehabilitation, he went on to build a varied career, including working with young adults with learning disabilities and developing features for the Salisbury Journal. It was there that he met his wife, Lindsey, and went on to build a family life.
Over the years, Gavin has continued to find ways to enjoy the things that matter to him. Golf has become an important part of his life, giving him the opportunity to spend time outdoors, enjoy the company of friends and continue competing in a sport he loves.
Reflecting on his experience, Gavin said:
“It’s amazing to think I have now lived with the tumour for almost 25 years. I have had to overcome many hurdles and still am doing so to this day. Usually the pain, if any, is very manageable but the demands on life in general are greater.”
Gavin’s story is a reminder that living with a brain tumour can involve ongoing challenges long after diagnosis and treatment. It can mean adapting to changes in sight, managing symptoms and finding new ways to maintain independence, relationships and the activities that bring meaning to everyday life.
Finding reliable information about brain tumours
A brain tumour diagnosis can bring many questions for the person affected and for their family and friends. Understanding the condition, the investigations involved and the possible treatments can help people feel better informed when navigating their care.
The Brain & Spine Foundation’s brain tumour booklet provides information about:
- Different types of brain tumours
- Common symptoms
- Tests and investigations
- Possible treatments
- Recovery and rehabilitation
- Returning to everyday activities
The booklet also includes sources of further support and information, helping readers explore where to turn for additional guidance.
Whether you have recently received a diagnosis, are supporting someone with a brain tumour or want to understand more about the condition, our booklet is designed to help you find clear, accessible information.
Read or download our brain tumour booklet
You can also find information about our other health information booklets on our booklets page.
Raising awareness and supporting people affected by brain tumours
International Brain Tumour Awareness Week is an opportunity to listen to the experiences of people affected by brain tumours, share reliable information and recognise that every person’s experience is different.
Gavin’s story highlights the long-term impact a diagnosis can have, but also the ways people adapt to changes in their lives and find new ways to move forward.
At the Brain & Spine Foundation, we provide information and support to help people affected by neurological conditions understand their condition and feel less alone.
This International Brain Tumour Awareness Week, help us raise awareness by sharing Gavin’s story and directing people to our brain tumour booklet.