I just wanted to say a big thank you to all the team for Saturday’s Chiari Conference. It really was a very special day, hugely beneficial both for relatives and ‘sufferers’ alike.
On 4 November 2017, Brain & Spine Foundation organised a one-day conference for adult patients affected by Chiari malformations and associated conditions such as syringomyelia.
The ‘Life with Chiari’ conference saw 120 attendees fill the lecture theatre at the National Hospital for Neurology and Neurosurgery, Queen Square, London. Patients, their family and friends, came from all parts of the UK to hear experts talk about Chiari malformations and how to manage life with this condition.
It was also an opportunity for many patients to interact with others affected by similar experiences. We were really pleased to receive very positive feedback on the conference from those who attended. 92% of attendees who filled in the evaluation form considered the event to be either ‘good’ or ‘very good’ overall.
Mr Graham Flint, Consultant Neurosurgeon, Queen Elizabeth Hospital, Birmingham, Chair for the day and main speaker
Simon Thompson, Consultant Nurse, The National Hospital for Neurology and Neurosurgery, London
Dr Anna Mandeville, Consultant Clinical Psychologist, The National Hospital for Neurology and Neurosurgery, London
Kayleigh Salter, a Chiari malformation patient
Susannah Worby, Clinical Specialist Occupational Therapist in Neurosurgery, The National Hospital for Neurology and Neurosurgery, London