Today, on Rare Disease Day, we are excited to launch an online space for anyone affected by any neurological issue. Whether you have a diagnosis or not, are a family member, carer or friend, please do join the group.
We are using a service called HealthUnlocked which is an online platform that works as a social network, connecting people with similar health backgrounds to exchange and share information, advice and stories.
Users are able to share their concerns anonymously with other members and interact with each other in a safe space moderated by BSF staff and HealthUnlocked. By finding others with similar health backgrounds, members can take on day-to-day health concerns together.
We think it’s a great space to share stories and help each other, we hope you will too!