text resize

Current Size: 100%

0808 808 1000

Talk to a nurse

Providing expert support to people affected by neurological problems

Ways to donate

Click on the gold donate button on the right to make a secure online single donation using your credit or debit card.
Alternatively choose one of the buttons below:

Please don't forget to: giftaid it

Telephone or call020 7793 5900

BSF announces conference for adults affected by Chiari malformations in November

Life with Chiari – A one-day conference for adults affected by Chiari

Brain & Spine Foundation is proud to organise events for health professionals and for patients and carers of people affected by neurological problems.

This year we are very pleased to announce a one-day conference for adults who have been affected by Chiari malformations and associated conditions such as syringomyelia.

Chiari malformations happen when the lower part of the brain is pushed down towards the spinal cord. It is considered a rare condition, however just last year it was one of the top neurological topics our Helpline nurses most received queries about.

The Life with Chiari conference will bring together patients and carers to meet and share stories and hear from neurological experts talking on a variety of topics relating to managing Chiari and associated conditions.

Event details

Saturday, 4th November 2017, from 9.30am to 3.30pm at The National Hospital for Neurology and Neurosurgery, 33 Queen Square, London WC1N 3BG

Conference programme

Full programme to be available soon.

Confirmed speakers: 

  • Mr Graham Flint, Consultant Neurosurgeon – Chair of the day, will discuss diagnosis, treatment and latest research.
  • Dr. Anna Mandeville, Consultant Clinical Psychologist – Will discuss pain and pain management.
  • Susannah Worby, Clinical Specialist Occupational Therapist in Neurosurgery – Will discuss fatigue and fatigue management at home and in the workplace.
  • Simon Thompson, Consultant Nurse – Will discuss shunts and hydrocephalus.
  • Kayleigh Salter (Chiari patient) – Will discuss treatments and after effects from a personal perspective.

There will be a Q&A panel with the Chair and the speakers.


Tickets for the event cost £20 per person including a sandwich lunch. You can purchase tickets here.  

Dietary and accessibility requirements: Please contact us at info@brainandspine.org.uk to let us know if you have any dietary and/or accessibility requirements.


This event is kindly supported by United Business Group.