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Author Topic: SAH - 16 years on  (Read 908 times)

Offline jan19230

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SAH - 16 years on
« on: July 03, 2017, 11:12:03 am »
I had my SAH in November 2001 and had an embolisation the following day which was successful, although i did have an "moment" shortly after returning home from hospital when I had an excrutiating pain in the same area.  I had a check angiogram and all was OK.   

16 years on and I still get headaches, memory loss, I find reading difficult (almost like I've developed dyslexia), cannot stand bright lights or loud noises and I get very dehydrated no matter how much water I drink.  Fatique is also a problem as well as depression, which seems to be getting worse and my get up and go, got up and left some time ago.

I was having annual MRIs to check everthing was OK, but my latest MRI in October last year was "inconclusive" and a cerebral angiogram was recommended.  I am still waiting for that appointment.  I rang the hospital today to discover the waiting list for this procedure is about a year.  Is this normal?

Offline web_editor

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Re: SAH - 16 years on
« Reply #1 on: July 03, 2017, 01:49:53 pm »
Hi jan19230,

Thank you for using our forum. I'm sorry to hear about your health problems. I hope someone will come here and share their experience with you. May I suggest you contact our nurses through our Helpline in the meantime? http://www.brainandspine.org.uk/helpline-contact-details

If you wish to talk to other people who have had a SAH, perhaps you might be interested in joining our Facebook group for people affected by SAH: https://www.facebook.com/groups/1381306308569765/

I hope this is useful.

With best wishes,
BSF's Digital Communications Officer