text resize

0808 808 1000

Talk to a nurse

Author Topic: After Effects of brain tumour removal  (Read 1913 times)

Offline robc1977

  • Newbie
  • *
  • Posts: 2
After Effects of brain tumour removal
« on: October 06, 2016, 12:40:14 pm »
Hi All
I join this forum looking for some answers I suppose for piece of mind as much as anything else.
In Feb 2016 I had a brain tumour removed. It was classed as a grade 2 benign tumour. The surgeon was happy and said I no longer needed any treatment. I get scanned every 6 months for standard monitoring.
I lived on the buzz of having this good news from what was a testing time. I rushed back to wok and lived with the adrenaline of been alive. Then about 3 weeks after the results of my first scan (which were good) in june, I started to feel light but heavy headed, feel dizzy at times, like when using the keyboard to writ this. My body aches and just feels so drained of energy. My sleep is rubbish, I have ear ache all the time and I mean all the time with some headaches now and again. My docs do nothing and the aftercare nurse says they wont rescan me early. I'm living in fear of something not been right with me. I know my body and its not right. They say I wont be feeling really sick ect.... if it was a tumour coming back, but I never was like this when they found one. This year a friend of mine was diagnosed with a terminal one yet he had no signs at all. Anyone that's had one removed is this normal for your body to feel this way and how long for?
My next scan is November 12th seems like ages away. Please help with some info

Offline robc1977

  • Newbie
  • *
  • Posts: 2
Re: After Effects of brain tumour removal
« Reply #1 on: October 06, 2016, 12:42:11 pm »
**They say I would be feeling really sick ect.... if it was a tumour coming back, but I never was like this when they found one.

Offline web_editor

  • Administrator
  • Full Member
  • *****
  • Posts: 121
Re: After Effects of brain tumour removal
« Reply #2 on: October 14, 2016, 10:58:36 am »
Dear rob1977

Welcome to the forum and thank you for posting here. I'm sorry to hear that you are feeling unwell after your benign brain tumour removal and I apologise for not writing to you earlier.

We created this forum space for people to interact and share experiences with each other. I do hope other people can come here to share their experiences. I will ask if any of our social media followers can come here and write to your post.

Please do contact our Helpline in the meantime. Our specialist nurses will be able to provide you with personalised and confidential support and expert information on your query. http://www.brainandspine.org.uk/helpline-contact-details

All the best,
Aaron
BSF's Digital Communications Officer

Offline BrainManiac

  • Newbie
  • *
  • Posts: 1
Re: After Effects of brain tumour removal
« Reply #3 on: June 23, 2017, 10:16:40 am »
to make sure everything is fine you should do the brain scan private, I know it will cost you some money, but its better to do this in private clinic. I heard ( not sure if its true) doctors don't say the truth even if you are sick, because they want to save money. It's happend in my family. My brother was send to hospital for MRI scan, because he didn't feel well and after this his doctor told him there is nothing to worry about, so he just start taking painkillers and that's it. After few weeks I suggest my cousin to do the MRI scan again, but in private clinic, and he did. Cancer 2nd stage. so I you see not everyone is honest. I'm not saying that every GP is the same.

 

anything