Call our Helpline: 0808 808 1000

Coronavirus - information for people with neurological problems

We have put together information on neurological problems and coronavirus (COVID-19) to support you and to let you know that help is available.

We're here to help - our helpline is still active - donate to our cause

We don't know how long the coronavirus pandemic will last. But we do know that it is having a big impact on people with neurological problems.

People are worried about their own risk with the coronavirus (COVID-19), and are struggling to make sense of all the guidance available. Others are missing out on vital appointments, or services that help them live with their condition. And some are struggling with staying at home and missing contact with their family and friends.

Our services are responding by doing what we have always done - helping people to feel more informed, better supported, and confident to make the right next step.

To help us continue to do this please donate to our cause.

DONATE

What you need to know about coronavirus (COVID-19)

Am I vulnerable or at high risk?

Am I vulnerable or at high risk?

Some people may be at higher risk and will need to follow further advice. Learn if this applies to you and how to find support if you need it.

What should I be doing to stay safe?

What should I be doing to stay safe?

Social distancing, self-isolation and social shielding - what's the difference? Understand how to stay safe and find out which advice you should be following at this time, depending on your own situation.

How to treat coronavirus at home

How to treat coronavirus at home

If you are experiencing symptoms and are self-isolating, this information will support you to manage your symptoms while you recover.

If you are affected by a neurological problem, you may be worried about whether you are more at risk from coronavirus. You may also be feeling lonely, anxious or bored.

It is OK to feel this way.

We have brought together some information and links that we hope will support you to cope and manage your health and feelings while you stay at home.

During this difficult time, it is important to think about your wellbeing and to take care of your body and mind.

Make sure you get further support if you feel you need it.

 

Ways to support your wellbeing while staying at home

Taking care of your mental wellbeing

Taking care of your mental wellbeing

You may be feeling anxious or stressed during this time. You are not alone - find information and support to help you take care of your mental wellbeing, whether you are social distancing or self-isolating.

Ways to connect and things to do

Ways to connect and things to do

See our suggestions and ideas for how you can keep in touch with those close to you and how you can continue to be a part of your community while staying at home. Find free online activities and other things to do.

How we can help

Our helpline is a free confidential service providing support to anyone affected by a neurological condition or problem, their family, friends and carers.

Our helpline team are here to support you however we can.

Call free on 0808 808 1000 or email our helpline team: helpline@brainandspine.org.uk. Helpline hours are Monday to Thursday: 9am to 4pm.

Our Facebook groups are still active, the groups are for people affected by Chiari malformations and subarachnoid haemorrhage.

These groups are a great way for people to interact, share their stories and provide mutual support. They are also a useful tool for people wanting to alleviate the stress and anxiety associated with neurological health problems.

Where to find out more

We have gathered links to other charities and organisations who have information about specific neurological problems, as well other health problems and general concerns, to help you find the right information for you.

Find more support

Staying safe

Living with a neurological problem can be challenging and we understand that everyday life can be more difficult now because of coronavirus.

The UK Government's advice for those living in England is that it is important that we all stay alert and stay at home as much as possible to stop us from spreading or catching the virus.

If you are at high risk, you should have received a letter from the NHS and it is strongly advised that you follow guidance on social shielding.

If you are not at high risk, you may leave your home for the following reasons: 

  • shopping for basic necessities – such as food and medicine  
  • outdoor exercise and activities, while following social distancing rules
  • meet one other person from a different household outdoors, while following social distancing guidelines 
  • a medical need, to provide care or help a vulnerable person 
  • travelling to and from work – where this absolutely cannot be done from home

Use the links on this page to learn more about coronavirus and what you can do to stay healthy.

The regulations in ScotlandWales and Northern Ireland may be different to those in England and you should make sure to check for guidance that applies to you and where you live.