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I always get a funny look: living with spinal myoclonus
05 August 2011
Spinal myoclonus - what's that?
"When people ask me what’s wrong and I tell them that I have spinal myoclonus, I always get a funny look as they have no idea what I’m speaking about," says Vicky, whose patient perspective article is new on the website today.
Myoclonus is a series of uncontrollable, involuntary muscle contractions which can develop alongside disorders of the nervous system, although in Vicky's case the cause is unknown.
"When I explain that in plain simple English that I have uncontrollable jerks, they just brush it off and think it is nothing," she says. In her article, she explains the realities of living with a movement disorder and how she has come to terms with life with spinal myoclonus.
