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Cavernoma: get information and support from Cavernoma Alliance UK
02 December 2010
Do you know someone affected by a cavernoma (a cavernous malformation in the brain), or do you have a cavernoma yourself? Then you could get support and information from a charity dedicated to improving quality of life for those affected by either single or multiple cavernomas through support, education, and promotion of research.
Cavernoma Alliance UK was established in 2005 by and for people affected by a cavernoma - also known as cavernous angioma, cavernous haemangioma or cerebral cavernous malformation (CCM). They produce an information leaflet containing basic information about cavernoma, as well as several other, more in-depth publications.
Cavernoma Alliance UK are working with the Brain and Spine Foundation as a partner organisation for our Information Project.
Events for 2011
Cavernoma Alliance UK are also hosting the following events in 2011.
Mr Neil Kitchen will speak on the limitations of cavernoma surgery during Brain Awareness Week. This will occur in The Old Boardroom at the National Hospital for Neurology and Neurosurgery on Saturday 19 March 2011. This talk will be free of charge and refreshments will be provided.
Cavernoma Alliance UK are also pleased to announce the Young Persons' CaverHub to be held in The Old Boardroom, National Hospital for Neurology and Neurosurgery, Queen Square, London, WC1 with a speaker from Great Ormond Street Hospital for Children and others.
The Agenda for the International Forum will be on the Cavernoma Alliance website in February 2011. The Forum will take place at the Grange Holborn Hotel, London on Saturday 4 June 2011. There will be no cost for admission and concessionary rooms will be available.
Related links
- Cavernoma Alliance UK (opens in a new window)
- Vascular malformations of the brain booklet
