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0808 808 1000

Talk to a nurse

Providing expert support to people affected by neurological problems

Ways to donate

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Alternatively choose one of the buttons below:

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Telephone or call020 7793 5900

Useful contacts, support groups and further reading

Brain & Spine Helpline

Brain & Spine Foundation
LG01 Lincoln House
Kennington Park
1-3 Brixton Road
London
SW9 6DE
 
Helpline: 0808 808 1000
 
Run by neuroscience nurses, providing support and information on all aspects of neurological conditions for patients, their families and carers and health professionals.
 
Trigeminal Neuralgia Association UK
PO Box 234
Oxted
Surrey
RH8 8BE
 
Helpline: 01883 370214
Tel: 01883 371595
 
A registered charity providing support and information on trigeminal neuralgia and face pain.
 
Shingles Support Society
41 North Road
London
N7 9DP
 
Helpline: 0845 123 2305
 
A sub-group of the Herpes Viruses Association (HVA), offering support and information on shingles and post-herpetic neuralgia.
 
OUCH UK (Organisation for the Understanding of Cluster Headache)
PO Box 62
Tenby
SA70 9AG
 
Helpline: 01646 651 979
 
Support and information on cluster headache.
 
Pain Concern
62-66 Newcraighall Road
Edinburgh
EH15 3HS
 
Helpline: 0300 123 0789
 
Provide information, offer support and raise awareness for those living with pain.
 
British Pain Society
Third Floor
Churchill House
35 Red Lion Square
London
WC1R 4SG
 
Tel: 020 7269 7840
 
A membership organisation for health professionals who care for people with pain. The website provides information for people living with pain.
 
Action on Pain
15 Blackthorn Drive
Scarning
Norfolk
NR19 2UJ
 
Helpline: 0345 603 1593
 
Run entirely by volunteers who have been affected by persistent pain, the charity provides information, offers support and campaigns for those living with pain. 
 

General health

NHS Choices
www.nhs.uk

NHS Direct

0845 46 47

Support groups

The Brain & Spine Foundation’s online discussion forum offers the opportunity to post messages, exchange views and share experiences with other users. 

Trigeminal Neuralgia Association UK also has an online forum.

Further reading

The Pain Toolkit is a website with support and information on pain self-management.

Understanding & Managing Long-term Pain (2015) is a booklet produced by the British Pain Society to help patients living with pain. It explains what pain is, what can be done about it and who can help.

The National Institute for Health and Care Excellence (NICE) has produced information for patients explaining the advice that they give to the NHS on caring for people with neuropathic pain.

Breathworks and Headspace are two organisations offering courses on mindfulness techniques that some people may find helpful for managing their pain:

The Ottawa Personal Decision Guide is a resource developed by the University of Ottawa to help people make health-related decisions.



pdf Download this booklet as a pdf