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Vascular malformations of the brain

A guide for patients and carers

Download this booklet in PDF format (1435kb)

Useful contacts, support groups and further reading

This page contains a list of organisations that you might find helpful if you have a vascular malformation of the brain. It also points you towards support groups, and other Brain and Spine Foundation publications that may be relevant.

Vascular malformations of the brain:

Brain and Spine Helpline
Brain and Spine Foundation
3.36 Canterbury Court
Kennington Park
1-3 Brixton Road
London SW9 6DE
0808 808 1000
www.brainandspine.org.uk

Run by neuroscience nurses, providing support and information on all aspects of neurological conditions for patients, their families and carers, and health professionals.

BASIC (Brain and Spinal Injury Charity)
Brain and Spinal Injury Centre
554 Eccles New Road
Salford M5 5AP
0870 750 0000
www.basiccharity.org.uk

Support and information on neurological conditions.

Neurosupport
The Neurosupport Centre
Norton Street
Liverpool L3 8LR
0151 298 2999
www.neurosupport.org.uk

Support and information on neurological conditions.

AVM Support UK
Suite G03
Blyth CEC
Ridley Street
Blyth
Northumberland NE24 3AG
www.avmsupport.org.uk

Support and information on AVMs.

Cavernoma Alliance UK
(based in Dorset)
www.cavernoma.org.uk

Epilepsy:

Epilepsy Action
New Anstey House
Gate Way Drive
Yeadon
Leeds LS19 7XY
0808 800 5050
www.epilepsy.org.uk

Support and information on epilepsy.

National Society for Epilepsy
Chesham Lane
Chalfont St Peter
Buckinghamshire SL9 0RJ
01494 601 400
www.epilepsysociety.org.uk

Support and information on epilepsy.

Stroke:

Stroke Association
240 City Road
London EC1V 2PR
0303 303 3100
www.stroke.org.uk

Support and information on stroke.

Driving:

DVLA (Driver Vehicle and Licensing Agency)
Drivers Medical Group
Longview Road
Swansea SA99 1TU
0300 790 6806

www.dft.gov.uk/dvla

www.direct.gov.uk/motoring

Information on medical rules for drivers.

Flying:

Aviation Health
17c Between Towns Road
Oxford OX4 3LX
01865 715 999
www.aviation-health.org

Information on health and flying.

General health:

NHS Choices
www.nhs.uk

NHS Direct
0845 46 47

Medical advice and information on health services.

Support groups

The Brain and Spine Foundation’s online discussion forum offers the opportunity to post messages, exchange views, share experiences and ask questions.

www.brainandspine.org.uk/applications/discussion

AVM Support UK and Cavernoma Alliance UK provide online support groups.