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Transverse myelitis
A guide for patients and carers
Recovery and convalescence
In transverse myelitis full recovery often occurs even if severe leg weakness has developed. This is because the myelin sheaths around axons can be partially reformed and also because the inflammation stuns quite a lot of surrounding normal spinal cord. As a comparison, the amount of permanent damage to the spinal cord is vastly less than after a traumatic injury to the spinal cord due to a motor vehicle accident. Recovery can take many months; however, the vast majority of people do improve significantly.
Physiotherapy and general nursing care are the most important aspects of managing this condition in the short and longer term although there will also be a need for periods of rest, especially in the early stages. Keeping active is also extremely important. If severe weakness has developed, then mechanical support with wheelchairs, walking frames etc. will usually be needed. In some centres you may be transferred to a specialist rehabilitation unit. Regular assessment will be made regarding the continued use of a urinary catheter. Sexual function may be affected but should improve as the damaged area of the spinal cord improves. You can expect continuing improvement for one to two years after damage to the central nervous system.
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