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Paralysis - the loss of muscle power
A guide for patients and carers
Download this booklet in PDF format (1072kb)
Other organisations that may be able to help
Shine (formerly Association for Spina Bifida & Hydrocephalus (ASBAH))
42 Park Road
Peterborough PE1 2UQ
Helpline: 0845 450 7755
Website: www.shinecharity.org.uk
(Support, advocacy and direct services)
Brain & Spine Helpline
Brain and Spine Foundation
3.36 Canterbury Court
Kennington Park
1-3 Brixton Road
London SW9 6DE
Tel: 0808 808 1000
(Information and support on neurological disorders for patients, carers and health professionals)
British Polio Fellowship
Ground Floor
Unit A, Eagle Office Centre
The Runway
South Ruislip
Middlesex
HA4 6SE
FREEPHONE: 0800 0180 586
Website: www.britishpolio.org.uk
(Welfare, advice and social contacts)
BSM Mobility
81 Hartfield Road
Wimbledon
London SW19 3TJ
Tel: 0208 545 1333
Website: www.bsm.co.uk/mobility
(Driving instruction for disabled people)
Capability Scotland
11 Ellersly Road
Edinburgh EH12 6HY
Tel: 0131 313 5510
Website: www.capability-scotland.org.uk
(Advice, education and information, accommodation and therapy)
Chest, Heart and Stroke Scotland
65 North Castle Street
Edinburgh EH2 3LT
Tel: 0131 225 6963
Website: www.chss.org.uk
(Advice, information, education and research in Scotland)
Disability Sport Events
Belle Vue Centre
Pink Bank Lane
Manchester
M12 5GL
Tel: 0161 953 2499
Website: disabilitysport.org.uk
(For information, support and counselling)
Mobilise
National Headquarters
Ashwell Thorpe
Norwich NR16 1EX
Tel: 01508 489449
Website: www.mobilise.info
(Representation, information and advice on mobility issues)
Disabled Living Foundation
380-384 Harrow Road
London W9 2HU
Tel: 0870 603 9177 helpline
Website: www.dlf.org.uk
(Advice on equipment for daily living)
Driving Assessment Service (Scotland)
Astley Ainslie Hospital
133 Grange Loan
Edinburgh EH9 2HL
Tel: 0131 537 9192
Website: www.scotland.gov.uk
(Access and advice on driving with a disability)
DVLA Drivers’ Medical Group
DVLA
Swansea SA99 1TU
Tel: 0870 600 0301
Website: www.dvla.gov.uk
(Fitness to drive)
Headway
7 King Edward Court
King Edward Street
Nottingham NG1 1EN
Tel: 0115 924 0800
Website: www.headway.org.uk
(Support for head injured people, families and carers)
Multiple Sclerosis Society of Great Britain & Northern Ireland
Ms National Centre
372 Edgware Road
Staples Corner
London
NW2 6ND
Tel: 0207 371 8000 helpline
Website: www.mssociety.org.uk
(Information and support; funding for multiple sclerosis research)
Multiple Sclerosis Society (Scottish Office)
2A North Charlotte Street
Edinburgh EH2 4HR
Tel: 0131 225 3600
Website: www.mssociety.org.uk
(Information and support; funding for multiple sclerosis research)
Queen Elizabeth’s Foundation for Disabled People
Leatherhead Court
Woodlands Road
Surrey KT22 OBN
Tel: 01372 841100
Website: www.qefd.org
(Information on all aspects of disability including head injury)
RADAR (The Royal Association for Disability & Rehabilitation)
12 City Forum
250 City Road
London EC1V 8AF
Tel: 0207 250 3222
Website: www.radar.org.uk
(National disability campaigning and information service)
REMAP G.B. (Technical Equipment for Disabled People)
D9 Chaucer Business Park
Kemsing
Sevenoaks
Kent
TN15 6YU
Tel: 0845 1300 456
Website: www.hants.gov.uk
(Custom made and free to disabled people)
Scope (for people with cerebral palsy)
6 Market Road
London
N7 9PW
Tel: 0800 800 3333
Website: www.scope.org.uk
(Confidential information, advice and support)
Spinal Injuries Association
SIA House
2 Trueman Place
Oldbrook
Milton Keynes
MK6 2HH
Tel: 0800 980 0501
Website: www.spinal.co.uk
(Information, practical support, counselling, campaigns, social policy and publications)
Stroke Association
240 City Road
London
EC1V 2PR
Tel: 0845 30 33 100
Website: www.stroke.org.uk
(Information, support and publications)
Winged Fellowship Trust (Holidays for the Disabled)
Jubilee Lodge
Appeals Office
Orange Farm
High Road
Chigwell
IG7 6DP
Tel: 0208 500 8675
Website: www.vitalise.org.uk
(General information, holiday brochures and bookings)
42 Park Road
Peterborough PE1 2UQ
Helpline: 0845 450 7755
Website: www.shinecharity.org.uk
(Support, advocacy and direct services)
Brain & Spine Helpline
Brain and Spine Foundation
3.36 Canterbury Court
Kennington Park
1-3 Brixton Road
London SW9 6DE
Tel: 0808 808 1000
(Information and support on neurological disorders for patients, carers and health professionals)
British Polio Fellowship
Ground Floor
Unit A, Eagle Office Centre
The Runway
South Ruislip
Middlesex
HA4 6SE
FREEPHONE: 0800 0180 586
Website: www.britishpolio.org.uk
(Welfare, advice and social contacts)
BSM Mobility
81 Hartfield Road
Wimbledon
London SW19 3TJ
Tel: 0208 545 1333
Website: www.bsm.co.uk/mobility
(Driving instruction for disabled people)
Capability Scotland
11 Ellersly Road
Edinburgh EH12 6HY
Tel: 0131 313 5510
Website: www.capability-scotland.org.uk
(Advice, education and information, accommodation and therapy)
Chest, Heart and Stroke Scotland
65 North Castle Street
Edinburgh EH2 3LT
Tel: 0131 225 6963
Website: www.chss.org.uk
(Advice, information, education and research in Scotland)
Disability Sport Events
Belle Vue Centre
Pink Bank Lane
Manchester
M12 5GL
Tel: 0161 953 2499
Website: disabilitysport.org.uk
(For information, support and counselling)
Mobilise
National Headquarters
Ashwell Thorpe
Norwich NR16 1EX
Tel: 01508 489449
Website: www.mobilise.info
(Representation, information and advice on mobility issues)
Disabled Living Foundation
380-384 Harrow Road
London W9 2HU
Tel: 0870 603 9177 helpline
Website: www.dlf.org.uk
(Advice on equipment for daily living)
Driving Assessment Service (Scotland)
Astley Ainslie Hospital
133 Grange Loan
Edinburgh EH9 2HL
Tel: 0131 537 9192
Website: www.scotland.gov.uk
(Access and advice on driving with a disability)
DVLA Drivers’ Medical Group
DVLA
Swansea SA99 1TU
Tel: 0870 600 0301
Website: www.dvla.gov.uk
(Fitness to drive)
Headway
7 King Edward Court
King Edward Street
Nottingham NG1 1EN
Tel: 0115 924 0800
Website: www.headway.org.uk
(Support for head injured people, families and carers)
Multiple Sclerosis Society of Great Britain & Northern Ireland
Ms National Centre
372 Edgware Road
Staples Corner
London
NW2 6ND
Tel: 0207 371 8000 helpline
Website: www.mssociety.org.uk
(Information and support; funding for multiple sclerosis research)
Multiple Sclerosis Society (Scottish Office)
2A North Charlotte Street
Edinburgh EH2 4HR
Tel: 0131 225 3600
Website: www.mssociety.org.uk
(Information and support; funding for multiple sclerosis research)
Queen Elizabeth’s Foundation for Disabled People
Leatherhead Court
Woodlands Road
Surrey KT22 OBN
Tel: 01372 841100
Website: www.qefd.org
(Information on all aspects of disability including head injury)
RADAR (The Royal Association for Disability & Rehabilitation)
12 City Forum
250 City Road
London EC1V 8AF
Tel: 0207 250 3222
Website: www.radar.org.uk
(National disability campaigning and information service)
REMAP G.B. (Technical Equipment for Disabled People)
D9 Chaucer Business Park
Kemsing
Sevenoaks
Kent
TN15 6YU
Tel: 0845 1300 456
Website: www.hants.gov.uk
(Custom made and free to disabled people)
Scope (for people with cerebral palsy)
6 Market Road
London
N7 9PW
Tel: 0800 800 3333
Website: www.scope.org.uk
(Confidential information, advice and support)
Spinal Injuries Association
SIA House
2 Trueman Place
Oldbrook
Milton Keynes
MK6 2HH
Tel: 0800 980 0501
Website: www.spinal.co.uk
(Information, practical support, counselling, campaigns, social policy and publications)
Stroke Association
240 City Road
London
EC1V 2PR
Tel: 0845 30 33 100
Website: www.stroke.org.uk
(Information, support and publications)
Winged Fellowship Trust (Holidays for the Disabled)
Jubilee Lodge
Appeals Office
Orange Farm
High Road
Chigwell
IG7 6DP
Tel: 0208 500 8675
Website: www.vitalise.org.uk
(General information, holiday brochures and bookings)
Contents
- Introduction
- What is paralysis?
- What are the causes of paralysis?
- What are the symptoms of paralysis?
- Recovery and treatment
- Psychological aspects of coping with paralysis
- Dealing with paralysis in everyday life
- Other organisations that may be able to help
- Your feedback on Paralysis - the loss of muscle power