Motor neurone disease

A guide for patients and carers

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Other organisations that may be able to help

Speakability
1 Royal Street
London, SE1 7LL
Tel: 0808 808 9572
www.speakability.org.uk

(Information on support groups)

Brain & Spine Helpline
Brain and Spine Foundation
3.36 Canterbury Court
Kennington Park
1-3 Brixton Road
London SW9 6DE
Tel: 0808 808 1000
www.brainandspine.org.uk
(Information and support on neurological disorders for patients, carers and health professionals)

Communications Forum
c/o Royal College of Speech and Language Therapists
2 White Hart Yard
London
SE1 1NX
Tel: 020 7582 9200 
www.communicationsforum.org.uk
(Umbrella organisation promoting initiatives on behalf of people with communication impairments)

Crossroads
(Association of Crossroads Care Attendant Schemes)
10 Regent Place
Rugby
Warwickshire CV21 2PN
Tel: 0845 450 0350
www.crossroads.org.uk
(Practical support for carers; respite care at home)

Banstead Mobility Centre
Damson Way
Fountain Drive
Carshalton
Surrey SM5 4NR
Tel 020 8770 1151
(Information and assessment service for elderly and disabled people)

Disablement Income Group Scotland
5 Quayside Street
Edinburgh EH6 6EJ
Tel: 0131 555 2811
www.digscotland.org.uk
(Welfare benefits advisory service)

Mobilise
National Headquarters
Ashwell Thorpe
Norwich NR16 1EX
Tel: 01508 489449 
www.mobilise.info
(Representation, information and advice on mobility issues)

Disabled Living Foundation
380-384 Harrow Road
London W9 2HU
Tel: 0870 600 0301
www.dlf.org.uk

Drivers’ Medical Group
DVLA
Swansea SA99 1TU
Tel: 0870 600 0301
www.dvla.gov.uk
(Fitness to drive)

Hospice Information Service
St Christopher’s Hospice
51-59 Lawrie Park Road
Sydenham
London SE26 6DZ
Tel: 0870 903 3903
www.hospiceinformation.info
(Information on hospice and palliative care services in the UK and Ireland)

Mobility Advice and Vehicle Information Service (MAVIS)
O Wing, Macadam Avenue
Old Wokingham Road
Crowthorne
Berkshire RG45 6XD
Tel: 01344 661000
www.mobility-centres.org.uk
(Assessment and advice for disabled and elderly motorists)

NHS Direct
Tel: 0845 4647
www.nhsdirect.nhs.uk
(Medical advice and information on NHS services)

REMAP (Technical Equipment for Disabled People)
Hazeldene
Ightham
Sevenoaks
Kent TN15 9AD
Tel: 01732 883818 
www.remap.org.uk
(Custom made and free to disabled people)

The Royal College of Speech and Language Therapists
2 White Hart Yard
London,
SE1 1NX
Tel: 020 7378 3020
www.rcslt.org
(Speech therapy services)

Winged Fellowship Trust (Holidays for the Disabled)
Jubilee Lodge
Appeals Office
Grange Farm
High Road
Chigwell,
IG7 6DP
Tel: 020 7833 2594 
www.vitalise.org.uk
(General information; holiday brochures and bookings)

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