Motor neurone disease

A guide for patients and carers

Other organisations that may be able to help

Speakability 
1 Royal Street
London, SE1 7LL
Tel: 0808 808 9572 
(Information on support groups)

Brain & Spine Helpline 
Brain and Spine Foundation
7 Winchester House
Kennington Park
Cranmer Road
London SW9 6EJ
Tel: 0808 808 1000
(Information and support on neurological disorders for patients, carers and
health professionals)

Communications Forum
PO Box 854
3 Dufferin Street
London, EC1Y 8NB Tel: 020 7582 9200
(Umbrella organisation promoting initiatives on behalf of people with communication impairments)

Crossroads
(Association of Crossroads Care Attendant Schemes)
10 Regent Place
Rugby
Warwickshire CV21 2PN
Tel: 0845 450 0350 
(Practical support for carers; respite care at home)

Banstead Mobility Centre
Damson Way
Fountain Drive
Carshalton
Surrey SM5 4NR
Tel 020 8770 1151
(Information and assessment service for elderly and disabled people)

Disablement Income Group
Unit 5, 19-23 Wedmore Street
London N19 4RZ
Tel: 020 7263 3981
(Welfare benefits advisory service)

Disablement Income Group Scotland
5 Quayside Street
Edinburgh EH6 6EJ
Tel: 0131 555 2811
(Welfare benefits advisory service)

Disability Scotland
Princes House
5 Shandwick Place
Edinburgh EH2 4RG
Tel: 0131 229 8632
(Advice on disability; community care)

Disabled Drivers’ Association
National Headquarters
Ashwell Thorpe
Norwich NR16 1EX
Tel: 01508 489449
(Representation, information and advice on mobility issues)

Disabled Living Foundation
380-384 Harrow Road
London W9 2HU Tel: 0870 600 0301

Drivers’ Medical Group
DVLA
Longview Road
Swansea SA99 1TU
Tel: 0870 600 0301 
(Fitness to drive)

Health Information Service
Tel: 0800 665544

(General health information and advice)

Hospice Information Service
St Christopher’s Hospice
51-59 Lawrie Park Road
Sydenham
London SE26 6DZ
Tel: 0870 903 3903
(Information on hospice and palliative care services in the UK and Ireland)

Mobility Advice and Vehicle Information Service (MAVIS)
O Wing, Macadam Avenue
Old Wokingham Road
Crowthorne
Berkshire RG45 6XD
Tel: 01344 661000
(Assessment and advice for disabled and elderly motorists)

NHS Direct
Tel: 0845 4647
(Medical advice and information on NHS services)

REMAP (Technical Equipment for Disabled People)
Hazeldene
Ightham
Sevenoaks
Kent TN15 9AD
Tel: 01732 883818
(Custom made and free to disabled people)

The Royal College of Speech and Language Therapists
7 Bath Place
Rivington Street
London EC2A 3DR
Tel: 020 7613 3855
(Speech therapy services)

Winged Fellowship Trust (Holidays for the Disabled)
Angel House
Pentonville Road
London N1 9XD
Tel: 020 7833 2594
(General information; holiday brochures and bookings)

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Motor neurone disease

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