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CJD
A guide for patients and carers
What impact can CJD have on families of poepl with the condition?
According to the CJD Support Network, issues of stigma and discrimination can compound the distress of families of those with CJD. Much as in the early days of HIV infection, when people were unclear about how it could be caught, it is often not understood that none of the forms of CJD can be passed between people by normal contact.
Although only relatives of those with genetic CJD are prevented from becoming blood or organ donors and are asked to inform their doctor and dentist, there are instances of relatives of people with other forms of CJD being refused treatment.This lack of knowledge and understanding can make people with CJD in their family feel still more isolated and different.
Other carers have described their feelings of powerlessness as their relative’s condition deteriorates rapidly.
Other carers have described their feelings of powerlessness as their relative’s condition deteriorates rapidly.
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Contents
- Introduction
- What is CJD?
- What are the different types of CJD?
- What precautions do I need to take to stop CJD spreading?
- Can I get CJD from eating meat?
- How does the brain of someone with CJD differ from normal?
- What causes CJD?
- What does "genetic susceptibility" to CJD mean?
- Is there a genetic test for CJD?
- Can CJD be avoided, and is it catching?
- What are the symptoms of CJD, and how does the disease progress?
- How is CJD diagnosed?
- Are other conditions easily mistaken for CJD?
- How is CJD treated?
- What impact can CJD have on families of poepl with the condition?
- What support is available for carers of people with CJD?
- Conclusion
- Organisations that may be able to help
- Your feedback on CJD: A guide for patients and carers
