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CJD
A guide for patients and carers
Organisations that may be able to help
Brain and Spine Helpline
Brain and Spine Foundation
7 Winchester House
Kennington Park
Cranmer Road
London SW9 6EJ
Tel: 0808 808 1000
www.brainandspine.org.uk
(Information and support on neurological disorders for patients, carers and health professionals)
CJD Support Society
P.O. Box 346
Market Drayton
Shropshire TF9 4WN
Helpline: 01630 673973
www.cjdsupport.net
(Practical and emotional support for patients and carers affected by all types of CJD)
Crossroads
(Association of Crossroads Care Attendant Schemes)
10 Regent Place
Rugby
Warwickshire CV21 2PN
Tel: 01788 573653
Website:www.crossroads.org.uk
(Practical support for carers; respite care at home)
Food Standards Agency
Tel: 0845 757 3012
www.bsereview.org.uk
Human BSE Foundation
99 Warkworth Drive
Chester-le-Street
Co Durham DH2 3TW
Tel: 0191 389 4157
(Support and information for families affected by human BSE)
National CJD Surveillance Unit
Western General Hospital
Crewe Road
Edinburgh EH4 2XU
Tel: 0131 537 2128
www.cjd.ed.ac.uk
National Prion Clinic
Department of Neurology
St Mary’s Hospital
Praed Street
London W2 1NY
Email: help.prion@st-marys.nhs.uk
www.st-marys.org.uk/prion
NHS Direct
Tel: 0845 4647
www.nhsdirect.nhs.uk
(Medical advice and information on NHS services)
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Contents
- Introduction
- What is CJD?
- What are the different types of CJD?
- What precautions do I need to take to stop CJD spreading?
- Can I get CJD from eating meat?
- How does the brain of someone with CJD differ from normal?
- What causes CJD?
- What does "genetic susceptibility" to CJD mean?
- Is there a genetic test for CJD?
- Can CJD be avoided, and is it catching?
- What are the symptoms of CJD, and how does the disease progress?
- How is CJD diagnosed?
- Are other conditions easily mistaken for CJD?
- How is CJD treated?
- What impact can CJD have on families of poepl with the condition?
- What support is available for carers of people with CJD?
- Conclusion
- Organisations that may be able to help
