CJD: A guide for GPs
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Further advice and information
CJD: A guide for patients and carers, the detailed companion guide to this leaflet is available from the Brain and Spine Foundation (see below).
Brain and Spine Foundation
3.36 Canterbury Court
Kennington Park
1-3 Brixton Road
London SW9 6DE
Tel: 0808 808 1000
www.brainandspine.org.uk
(Information and support on neurological disorders for patients, carers and health professionals)
CJD Support Society
P.O. Box 346
Market Drayton
Shropshire TF9 4WN
CJD Helpline: 01630 673973
www.cjdsupport.net
(Practical and emotional support for patients and carers affected by all types of CJD)
Crossroads (Association of Crossroads Care Attendant
Schemes)
10 Regent Place
Rugby
Warwickshire CV21 2PN
Tel: 01788 573653
Website:www.crossroads.org.uk
(Practical support for carers; respite care at home)
Human BSE Foundation
99 Warkworth Drive
Chester-le-Street
Co Durham DH2 3TW
Tel: 0191 389 4157
(Support and information for families affected by human BSE)
National CJD Surveillance Unit
Western General Hospital
Crewe Road
Edinburgh EH4 2XU
Tel: 0131 537 2128
www.cjd.ed.ac.uk
National Prion Clinic
Box 98
The National Hospital for Neurology and Neurosurgery
Queens Square
London
WC1N 3BG
Tel: 0207 405 0755
email: help.prion@uclh.org
NHS Direct
Tel: 0845 4647
www.nhsdirect.nhs.uk
(Medical advice and information on NHS services)
vCJD Trust
c/o Charles Russell Solicitors
8-10 Fetter Lane
London EC4A 1RS
www.vcjdtrust.co.uk
3.36 Canterbury Court
Kennington Park
1-3 Brixton Road
London SW9 6DE
Tel: 0808 808 1000
www.brainandspine.org.uk
(Information and support on neurological disorders for patients, carers and health professionals)
CJD Support Society
P.O. Box 346
Market Drayton
Shropshire TF9 4WN
CJD Helpline: 01630 673973
www.cjdsupport.net
(Practical and emotional support for patients and carers affected by all types of CJD)
Crossroads (Association of Crossroads Care Attendant
Schemes)
10 Regent Place
Rugby
Warwickshire CV21 2PN
Tel: 01788 573653
Website:www.crossroads.org.uk
(Practical support for carers; respite care at home)
Human BSE Foundation
99 Warkworth Drive
Chester-le-Street
Co Durham DH2 3TW
Tel: 0191 389 4157
(Support and information for families affected by human BSE)
National CJD Surveillance Unit
Western General Hospital
Crewe Road
Edinburgh EH4 2XU
Tel: 0131 537 2128
www.cjd.ed.ac.uk
National Prion Clinic
Box 98
The National Hospital for Neurology and Neurosurgery
Queens Square
London
WC1N 3BG
Tel: 0207 405 0755
email: help.prion@uclh.org
NHS Direct
Tel: 0845 4647
www.nhsdirect.nhs.uk
(Medical advice and information on NHS services)
vCJD Trust
c/o Charles Russell Solicitors
8-10 Fetter Lane
London EC4A 1RS
www.vcjdtrust.co.uk