Brain tumour

A guide for patients and carers

Download this booklet in PDF format (1641kb)

Useful contacts, support groups and further reading

This page of the Brain Tumour booklet contains details of resources that may be able to provide further information and support.

Brain tumour:

Brain and Spine Helpline
Brain and Spine Foundation
3.36 Canterbury Court
Kennington Park
1-3 Brixton Road
London SW9 6DE
0808 808 1000
www.brainandspine.org.uk

Run by neuroscience nurses, providing support and information on all aspects of neurological conditions for patients, their families and carers, and health professionals.

BASIC (Brain and Spinal Injury Charity)
Brain and Spinal Injury Centre
554 Eccles New Road
Salford M5 5AP
0870 750 0000
www.basiccharity.org.uk

Support and information on neurological conditions.

Brain Tumour Action
25 Ann Street
Edinburgh EH4 1PL
0131 466 3116
www.braintumouraction.org.uk

Support and information on brain tumour.

Brain Tumour UK
Tower House
Latimer Park
Chesham HP5 1TU
0845 4500 386
www.braintumouruk.org.uk

Support and information on brain tumour.

Cancer Research UK
PO Box 123
Lincoln’s Inn Fields
London WC2A 3PX
0808 800 4040
www.cancerhelp.org.uk

Support and information on cancer.

Macmillan Cancer Support
89 Albert Embankment
London SE1 7UQ
0808 808 00 00
www.macmillan.org.uk

Support and information on cancer.

Samantha Dickson Brain Tumour Trust
Saddlers House
100 Reading Road
Yateley
Hampshire GU46 7RX
0845 130 9733
www.braintumourtrust.co.uk

Support and information on brain tumour.

Epilepsy:

Epilepsy Action
New Anstey House
Gate Way Drive
Yeadon
Leeds LS19 7XY
0808 800 5050
www.epilepsy.org.uk

Support and information on epilepsy.

National Society for Epilepsy
Chesham Lane
Chalfont St Peter
Buckinghamshire SL9 0RJ
01494 601 400
www.epilepsysociety.org.uk

Support and information on epilepsy.

Communication problems:

Connect
16-18 Marshalsea Road
London SE1 1HL
020 7367 0840
www.ukconnect.org

Support and information on communication problems (aphasia).

Speakability
1 Royal Street
London SE1 7LL
0808 808 9572
www.speakability.org.uk

Support and information on communication problems (aphasia).

Driving:

Driver and Vehicle Licensing Agency (DVLA)
Drivers Medical Group
Longview Road
Swansea SA99 1TU
0300 790 6806
www.dft.gov.uk/dvla

www.direct.gov.uk/motoring

Information on medical rules for drivers.

General health:

NHS Choices
www.nhs.uk

NHS Direct
0845 46 47

Medical advice and information on health services.

Research campaign:

Brain Tumour Research
The Business Centre
Padbury Hill Farm
Padbury
Buckingham MK18 2BN
01296 733011
www.braintumourresearch.org

Brain Tumour Research represents a group of brain tumour charities
and campaigns to raise funds for brain tumour research.

Support groups

The Brain and Spine Foundation’s online discussion forum offers the opportunity to post messages, exchange views, share experiences and ask questions.

www.brainandspine.org.uk/applications/discussion

There are various types of patient support groups many of which are organised on a local basis. You might like to contact one of the organisations listed in the Useful Contacts section above for information on any support groups that meet in your area.

The Brain and Spine Foundation’s Headstrong project provides information on brain tumours for children. There are information resources for older and younger children.

We have a dedicated brain tumour page on our website where you can access all of our brain tumour information, download our fact sheets and read patient perspectives on brain tumour.

www.brainandspine.org.uk/braintumour