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Our information project - funded by The Big Lottery Fund
In 2008 the Brain and Spine Foundation was awarded funding from The Big Lottery Fund to develop our vital information services.Thanks to this grant, worth £260k over 3 years, we made our information services accessible to even more of the thousands of people who need it.
As part of the project we updated our range of over 30 information booklets, on topics from headache and back pain to brain tumour, and extended the information available on the Brain and Spine Foundation website.
Our publications
New publications published as part of the project, were:
- Angiogram
- Brain and spine scans
- Brain tumour
- Chiari malformations
- Clinical trials
- Coiling of brain aneurysms
- Craniotomy
- Dizziness and balance problems
- Encephalitis
- Epilepsy
- Hydrocephalus and shunts
- Meningitis
- Migraine
- Motor neurone disease (MND)
- Multiple sclerosis
- Parkinson's disease
- Spinal strokes
- Spinal tumours
- Stroke
- Subarachnoid haemorrhage
- TIA (Transient ischaemic attack)
- Transverse myelitis
- Vascular malformations of the brain
- Vestibular rehabilitation exercises
Working together with partner organisations
As part of the project, the Brain and Spine Foundation began working with a number of partner organisations to ensure that as many people as possible can benefit from our information services. The project is now over but we continue to work with our partner organisations and welcome new collaborations.
Although we handle 50,000 requests for information every year through our website and our Helpline, we know that there are potential service users who may benefit from our information services but who are not yet aware of them. Working with partner organisations, including charities, hospital PALS departments and information centres and others, we hope to reach people who may not have access to the internet, or have not been directed to our helpline services by their hospital or GP.
So far, partner organisations working with us include:
- Astro Fund
- BIRT (Brain Injury Rehabilitation Trust)
- brainstrust
- Brain Tumour Research and Support Across Yorkshire
- Cancer Information Centre, University Hospitals of Leicester NHS Trust
- Cavernoma Alliance UK
- Connect
- Different Strokes
- Health Information Centre, University Hospital Coventry and Warwickshire
- I Have IIH
- Knowledge Centre, Walkergate Park for Neurorehabilitation & Neuropsychiatry
- Neuro Partners
- Neurosupport
- The Nottingham Traumatic Brain Injury Service
- OUCH (UK) - The Organisation for the Understanding of Cluster Headache
- Royal Hospital for Neuro-disability
- Shine (formerly ASBAH)
- Speakability
- The Spinal Cord Tumour Forum
- Spinal Injuries Association
- Surrey Dizziness Service
- The Health Shop, Ninewells Hospital & Medical School, Dundee
- Transverse Myelitis Society
You can read more about our partner organisations here
Or if you're still wondering, Why become a partner organisation? features case studies from two organisations describing how the partnership has benefited them.
This map shows how our partnership organisations are spread throughout the UK:
Would you like to work with us?
Are you interested in working with us as a partner organisation?Benefits to your organisation include free publications, publicity on our website and in our email newsletter, and the opportunity to have an input in the development of Brain and Spine Foundation publications. The partnership can be flexible and can be guided and developed to suit the needs of your organisation.
See our article on Why become a partner organisation? to find out how the partnership has benefited two of our existing partners, a small charity and a support group.
If you are interested, please email helpline@brainandspine.org.uk for more information.
