Undiagnosed neurological symptoms and conditions
Are you looking for information about undiagnosed conditions, neurological symptoms or how a diagnosis is made? This page is the place to start.
Undiagnosed conditions information sheet and related resources
An undiagnosed condition is one where someone experiences symptoms but does not have a formal diagnosis. In some circumstances, a person may have definite symptoms but further investigations do not point to a clear diagnosis.
This information sheet explains the process of getting a diagnosis and why neurological conditions are sometimes difficult to diagnose. It also contains some useful contacts to help you if you are undiagnosed.
You may also find these publications useful:
Neurological symptoms
- Back and neck pain
- Dizziness and balance problems
- Face pain
- Headache
- Memory problems
- Migraine
- Neuropathic pain
Tests and investigations
General information
Patient perspectives on undiagnosed conditions
Living with neurological problems
An anonymous person writes about the neurological problems she had following a head injury. "To be able to cope with not knowing what is wrong means becoming one’s own advocate, or trusting someone to do this for you. It means challenging people who are trying to label you. It means believing in what one’s body is saying, and not being hard on oneself when everything gets too difficult," she says.
Spinal myoclonus: Vicky's story
Vicky describes what it's like to live with the "uncontrollable jerks" that may stay with her for the rest of her life.
Would you like to be featured in a "patient perspective" article on this website?
If so, please email helpline@brainandspine.org.uk - we look forward to hearing from you.
Undiagnosed conditions discussion forum
Visit our Undiagnosed conditions discussion forum to chat about your symptoms and experiences, and to ask questions. The forum is moderated by nurses.
Need more information?
Call our free helpline on 0808 808 1000 to speak to a neuroscience nurse, or email helpline@brainandspine.org.uk
Or click to find out more about our helpline