|
Checklist for ongoing information
Here is a checklist for ongoing information following diagnosis or onset and reviewed on a regular basis.
After diagnosis people should be provided with some information, as appropriate, covering the following issues:
- A general explanation of the condition
- Any research trials that they might participate in
- Treatment options
- Symptoms and managing them
- Prognosis
- Physiotherapy, speech and language therapy
- Complementary therapy
- Nutritional advice
- Health and fitness
- Emotional changes
- Local services providers and what they provide (see local information template)
- Local support groups (see local information template)
- Relevant local or national charities (see www.neural.org.uk and www.lmca.org.uk)
- Aids and equipment that they might need or which could benefit them
Communicating about the condition with others (friends, workplace)
Leisure activities.
This list will need “topping up” in future consultations.
