Note on terminology

We have generally referred to “people affected by neurological conditions” when we refer to service users – this term is also intended to include carers and families. At times we may also make reference to “patient”. We are aware that this is not a preferred term for people affected by neurological conditions and is not used in the social care field. There are times, however, where it is felt that it is necessary to use the term in order to distinguish a clear meaning. For instance the term “information” within the NHS can often be used to describe the data collected to manage the organisation, public health data to describe the population and trends or clinical information that is shared between professionals. In this case it was felt necessary to talk about a policy for “patient information” in order to be clear that we are talking about information that is given to clients about their condition, treatment, or services.

We recognise that many people with neurological symptoms, for example; dizziness, neurological pain, movement disorders and tremor may not have a diagnosis. A considerable number of people will never get a firm diagnosis of their condition. The term people affected by neurological conditions is intended to encompass those who have recognised neurological symptoms even if they do not have a diagnostic label. Many of the information needs of this group of people will be the same as for those with a diagnosis.

Please note that by clicking on the 'text resize' link on the top right of each page, you can adjust the size of the text to suit you. You can also click on the 'Easy read version' link.