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A to Z of useful websites
Below is a list of other organisations and websites which may be useful. Conditions are listed alphabetically. The Brain and Spine Foundation is not responsible for the content of the following links, if there is an organisation which you would like added please email details to the Helpline team who will review content and suitability of the site before it is added.
Choose category:
- Acoustic Neuroma
- ADEM (Acute Disseminated Encephalomyelitis)
- Alzheimer’s Disease
- Aphasia
- Arachnoid Cyst
- Arnold Chiari Malformation (ACM)
- Arteriovenous Malformation
- Ataxia
- Back pain
- Bereavement
- Brain injury
- Brain tumour
- Cavernoma
- Cerebral palsy
- Charcot-Marie-Tooth Disease
- Chemotherapy
- Children
- Chronic Fatigue Syndrome
- Continence
- Counselling and psychotherapy
- Creutzfeldt-Jacob Disease (CJD)
- Dementia
- Devic's Disease
- Dizziness
- Dystrophy
- Encephalitis
- Epilepsy
- Eyes
- Face pain
- Generally useful websites
- Genetics
- Guillain-Barre
- Headache
- Health and Social Care
- Hemiplegia
- Huntington's disease
- Hydrocephalus
- Idiopathic Intracranial Hypertension
- Kyphosis
- Labyrinthitis
- Low grade glioma
- Meniere's Disease
- Meningioma
- Meningitis
- Mental Health
- Migraine
- Motor Neurone Disease
- Multiple Sclerosis
- Muscular Dystrophy
- Myalgic Encephalomyelitis (ME)
- Myasthenia Gravis
- Narcolepsy
- Neck pain
- Neurofibromatosis
- Neuropathy
- Osteoporosis
- Pain
- Paralysis
- Parkinson's disease
- Pituitary disorders/tumours
- Polio
- Progressive Supranuclear Palsy (PSP)
- Radiosurgery
- Radiotherapy
- Raynaud’s Syndrome
- Scoliosis
- Speech problems
- Spina bifida
- Spinal injury
- Spinal Muscular Atrophy
- Spinal surgery
- Spinal tumours
- Stroke
- Subarachnoid Haemorrhage
- Syringomyelia
- Transient Ischaemic Attack (TIA)
- Transverse myelitis
- Trigeminal neuralgia
- Vascular malformations
- Vertigo
- Wilson’s Disease
ADEM (Acute Disseminated Encephalomyelitis)
-
About ADEM
Page from the Transverse Myelitis Association website
Aphasia
- Speakability
-
Connect
Connect is a charity for people living with aphasia (communication disability usually following stroke). Connect works to promote effective services, new opportunities and a better quality of life for people living with aphasia. - Talking Point
Arachnoid Cyst
- Arachnoid Cyst Awareness
-
Arachnoid Cyst Friends
Yahoo group supporting people affected by Arachnoid Cyst (you need to join the group in order to read or post messages)
Brain injury
-
All About ABI (Acquired Brain Injury)
Website for children, created by the Brain and Spine Foundation -
Brainwave
For children with acquired brain injury. - Child Brain Injury Trust (CBIT)
- Headway - The Brain Injury Association
- Momentum
- Sudden Trauma Information Service Helpline
- UK Acquired Brain Injury Forum
Brain tumour
-
Brain tumour: information resources
The place to start for information on brain tumour. Includes the Brain and Spine Foundation Brain Tumour booklet, plus Headstrong resources for children and patient stories. - Brain Tumour Action
- Brain Tumour Research
- Brain Tumour UK
- CancerHelp UK
-
CLIC Sargent
For children and young people and their families - Macmillan Cancer Support
- Marie Curie Cancer Care
- Samantha Dickinson Brain Tumour Trust
Chemotherapy
- CancerHelp UK
-
CLIC Sargent
For children and young people and their families - Macmillan Cancer Support
Devic's Disease
-
About Devic's Disease
Page from the Transverse Myelitis Association website - Gayle's Place
Dystrophy
-
Duchenne Family Support Group
Helpline: 0870 241 1857 -
Muscular Dystrophy Campaign
Helpline: 020 7720 8055
Epilepsy
-
Epilepsy Action
Helpline: 0808 800 5050 -
Epilepsy Scotland
Helpline: 0808 800 2200 -
National Society for Epilepsy
Helpline: 01494 601400
Eyes
-
Moorfields Eye Hospital
Helpline: 0207 566 2345 -
Royal National Institute for the Blind (RNIB)
Helpline: 0845 766 9999
Generally useful websites
- European Dana Alliance for the Brain
- Patients Association
- Department of Health
- Patient UK
- Crossroads – caring for carers
- Neurological Alliance
- NHS Direct
- National Institute of Neurological Disorders and Stroke
- Brain and Spinal Injuries Charity (BASIC)
- DiseasesConditions.com
- Regional Driving Assessment Centre
- Healthtalkonline
Headache
-
OUCH UK (Cluster headache support group)
Tel: 01646 651979 -
The Migraine Trust
Tel: 020 7436 1336 -
Migraine Action
Tel: 0116 275 8317 - Headache Expert
Health and Social Care
-
Bee Careful
Free information, support and advice for vulnerable, elderly and disabled people, their families and professionals around the United Kingdom.
Hemiplegia
-
www.hemihelp.org.uk
Hemihelp is a UK based charity for children and young people with hemiplegia and their families.
Low grade glioma
-
Astro Fund
A charity offering information, inspiration and hope to those affected by low-grade brain tumours and support via an online support group.
Meningitis
-
Meningitis Research Foundation
Helpline: 0808 800 3344 -
Meningitis Trust
Helpline: 0800 028 18 28
Multiple Sclerosis
-
Multiple Sclerosis Society
Helpline 0808 800 8000 -
Multiple Sclerosis Trust
Helpline: 0146 247 6700
Pain
- Pain Concern
- The British Pain Society
- Pain Clinic.org
-
Action on Pain
Painline: 0845 6031593 (Local rate)
Radiosurgery
- London Radiosurgical Centre
- National Centre for Stereotactic Radiosurgery, Sheffield
- The Cromwell Hospital Gamma Knife Centre
Radiotherapy
- Cancer Research UK
-
CLIC Sargent
For children and young people and their families - Macmillan Cancer Support
Spinal injury
- ASIA - American Spinal Injury Association
-
Aspire
Supporting people with spinal injuries. - Backup Trust
- MASCIP - Multidisciplinary Association of Spinal Cord Injury Professionals
- Spinal Injuries Association
Subarachnoid Haemorrhage
-
Subarachnoid haemorrhage information
Information provided by Medical and Nursing teams from the Wessex and Greater Manchester Neuroscience Centres - Brain Help
- The Brain Aneurysm Foundation (USA)
- Brain aneurysm resources (USA)
-
Aneurysm Support (USA)
This US website has information and support on aneurysms, as well as patient stories and a discussion forum.
Transient Ischaemic Attack (TIA)
-
The Stroke Association
Helpline 0303 3033 100 - Different Strokes
- Circulation Foundation
